Patients & Parents - Frequently Asked Questions


Why are you asking for samples from my child?

Your child will be having samples of bone marrow and blood taken in order to make a diagnosis of their illness or help to guide their treatment. We are asking that you will allow us to take small additional samples at the same time for research.

Why do you need these samples for research?

The very best research into childhood leukaemia is carried out on samples from patients with the illness and a little extra sample would be extremely helpful. With your permission, we will also collect any surplus from the sample used for diagnosis.

Will anyone know which are my child’s samples?

Only you child’s medical team and the CellBank will know your child’s identity. Researchers will not know any personal information about your child such as their name, address or phone number. This means that we will not be able to tell you the results of the research using your child’s samples.

How do I find out about your research?

You will find a section on this website which tells you about the projects that have received CellBank samples and the scientific publications to come from them.

Do I have to give consent?

No. If you decide that you do not want your child’s samples to be used for research then they will not be stored in CellBank.

What if I change my mind after giving consent?

If you change your mind at any time and wish to withdraw consent you should contact CellBank who will ensure that all samples from your child in storage will be destroyed.


Further information can be found in the ‘Information leaflet for parents’.

ECSG
This site is designed and maintained by the Epidemiology & Cancer Statistics Group at the University of York.
© ECSG, Department of Health Sciences, University of York. University of York legal statements