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Recruitment instructions for clinical staff

When a child comes to clinic for leukaemia diagnostic testing, we would be grateful if you would discuss the issue of donating samples for research using the information leaflets provided.  We would also like you to take consent from the child's parent/guardian using the CellBank consent form.  Consent may be given for additional samples to be taken, for CellBank to make use of surplus diagnostic samples or both.

We have provided a variety of information leaflets aimed at different age groups - please use the most appropriate one.

There is also a specific set of patient information leaflets and a separate consent form for children with aplastic anaemia or other bone marrow failure disorders.

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Consent should be taken by staff who are trained to do so and who have read the relevant background information about CellBank. 

Under the Human Tissue Act 2004, children and young people who are 'competent' may provide consent to the storage and use of tissue for research, regardless of their age.  A parent may give consent if this is what the child prefers or if there is doubt about whether the child understands enough to give informed consent.  In most cases, you will ask parents of children below the age of 18 to provide consent as well as asking children and young people themselves if competent.

Once consent has been given, please place the consent form in the patient's notes, tick the CellBank box on the MRD Request Form and sign the consent box on the CellBank Sample Information Sheet (see below).

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