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Frequently asked questions - Aplastic anaemia

These are additional FAQs relating specifically to aplastic anaemia samples. General FAQs can be found here.

Have a question that is not covered here? Get in touch with us.


How does consent and sample collection differ for aplastic anaemia patients?

What if I use the wrong consent form?

What are the AA registry forms?

I have heard something about payment?


How does consent and sample collection differ for aplastic anaemia patients?

AA patients should be provided with the specialised AA information leaflets and consent should be taken using the AA consent forms.

Samples are taken in the same way as for CellBank. The difference is that we need 10ml peripheral blood in addition to the normal bone marrow sample and we are not collecting CSF from these patients. We only need the samples taken at diagnosis.  Any samples taken at other time points will be banked and will not be wasted.

What if I use the wrong consent form?

The consent forms are different colours but if you use the wrong one, don’t worry.  Both consent forms are very similar and cover banking the samples.  If you can get the parents to sign the correct consent later, that would be great.

What are the aplastic anaemia registry forms?

These forms give us additional information about AA patients at diagnosis and follow-up.  They are available on the aplastic anaemia documents & downloads page and we will also send them to you.

I have heard something about payment?

There is small payment made for the samples sent for this project and form the completed registry forms.  Details of how payments are made will be sent to you.